The Life of Isla Rose

We don’t feel completely empty anymore. We feel at peace. We feel full. The pain isn’t gone and it never will be. The sadness will always linger.

And now your body is gone from this world. I know that. And I’ll never get to do any of those things ever again. I’ll never truly come to terms with that. But I already feel your presence and love surrounding me as I begin my forever journey of grieving you. Your heart will always be a part of mine and every time I speak to you, I know you can hear me.

We had her for what felt like only a few moments, but they were the most beautiful moments we could have asked for. She went to sleep peacefully as she laid in her mother's arms, surrounded by her grandparents and the most unrelenting love that anybody could ever possibly give.

This week was another reminder that we couldn’t do this without our families. When we are feeling run down and empty, they are always here to fill us back up.

They say it takes a village to raise a child, but I think it takes a village to carry parents through the unimaginable even more. We couldn’t do this without our village. We will never be able to repay their love.

“The thing that breaks your heart is the very thing you were born to heal. Every world-changer’s work begins with a broken heart.”

If we can see a situation in black and white, then we can start to fill in the gaps with color.

Over the past few weeks, we have seen so many specialists and have had both horrible and amazing experiences. We have learned how to be not only the best advocates for ourselves, but for our sweet Isla Rose too.

On Friday, February 7, Elizabeth and I received test results back from the doctor that indicated that our baby girl - Isla Rose - had high levels of a protein that coincides with a variety of developmental issues… We were left with devastating news.